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Make data work for people’s health! – a follow-up webinar

Make data work for people’s health! – a follow-up webinar

Sitra and EHTEL are pleased to invite you to a joint webinar around the IHAN approach for trustfully personalised health services.
  • October 28, 2019 at 3:00 pm - 4:00 pm
  • Online

In this webinar we’ll have a short recap on what IHAN is all about and how it works in practice including IHAN requirements and core functionality. We’ll use again My Travel Health pilot as a practical example and deep dive into a governance through a Data Ecosystem Rulebook that includes business, technical, legal, data and ethical sections. We will have plenty of time for interaction and questions.

The webinar is a follow-up for the previous IHAN health webinar.

What? Webinar for experts and decision makers in digital health

Where? Online event hosted by Sitra and EHTEL

When? Monday 28 October 2019 at 15.00−16.00 EET / 14.00-15.00 CET

 

Sitra
Jaana Sinipuro
Project Director

 

EHTEL
Marc Lange
Secretary General

 

 

Programme

15:00 EET

Welcome and practicalities

Saara Malkamäki, Specialist, Sitra

15:05 EET

The Fair Data Economy Promise: From registers to personal data

Short recap
Sitra’s IHAN® project aims to build the foundation for personalized wellbeing and healthcare services. It is a joint collaboration effort for European organisations, and everyone is welcome to join. IHAN® ensures trust for new digital services and is founded upon European values.

Saara Malkamäki, Specialist, Sitra

15:10 EET

Pilot project: My Travel Health

Short recap
Utilizing national patient archives with citizen’s consent to create value for all parties: individuals, public and private sector. Implementing IHAN compliant services and using IHAN blueprint as a guideline for design. My Travel Health application: growing stronger roots, robust frame and components.

Perttu Prusi, Principal Solution Design Architect, Fujitsu

15:20 EET

From promise to practise – IHAN Architecture, requirements, functionality

Short recap
As IHAN is not a piece of software or an application but a new way to practice Data Economy, the architecture of IHAN is a collection of requirements rather than a technical specification. The basic components are identity of an individual, data associated to that individual and the consent of that identified individual granting access to the associate data.

Juhani Luoma-Kyyny, Leading Specialist, Sitra

15:25 EET

Questions

15:35  EET

Rulebook – a data ecosystem governance framework

Rulebook describes organisations’ legal, business, technical and governance framework in a data ecosystem. It is a founding document that ecosystem partners sign to adhere to. Rulebook Template contains a set of control questions that guides data ecosystem members to create an initial version of a specific rulebook making it possible for organisations to join various data ecosystems more easily and cost efficiently ensuring fair and sustainable business.

Jyrki Suokas, Leading Specialist, Sitra

15:45 EET

Questions

15:55 EET

Conclusion delivered by EHTEL

Marc Lange, Secretary General, EHTEL
Stephan Schug, Chief Medical Officer, EHTEL

16:00 EET

Webinar session ends

Sitra is a Think-and-Do Tank that collaborates with partners from different sectors to research, trial and implement bold new ideas that shape the future. Sitra’s IHAN® project aims to build the foundation for a new and fair data economy, where data will benefit all stakeholders: the individuals, the businesses and the society. IHAN demonstrates the journey from system-centred health care to human-driven and individual promotion of wellbeing.

EHTEL is the one multi-stakeholder organisation within Europe that brings together organisations and individuals engaged in all aspects of eHealth

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