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At the forum, we will focus on the current developments of the European health data space. We will learn about the TEHDAS results on data quality and infrastructure, data governance, the citizens’ views on data use, as well as the sustainability of the health data space. We will also broaden the discussion from the European health data space to global health perspectives. In addition to TEHDAS partners, a broad range of stakeholders will share their views.
TEHDAS, the joint action Towards the European Health Data Space, is coming to an end. TEHDAS project has been carried out by 25 European countries since 2021. Connecting and engaging European stakeholders from academia, business, public sector and NGOs has been a priority for TEHDAS.
The project advances more extensive use of health data across Europe. The European health data space (EHDS) will promote the development of health systems, and the availability, efficiency and sustainability of services. Research and innovation will benefit from improved access to data.
Our work provided elements to the European Commission’s legislative proposal on the EU’s health data space published in May 2022. Towards the end of the project, we will give recommendations to facilitate successful implementation of EHDS. TEHDAS supports the European Commission’s aim in creating a harmonised internal market for health data.
The event is free of charge. The forum is held as hybrid event and there is a limited capacity for participation in Helsinki.
The forum is an official side event of Radical Health Festival Helsinki, a digital health conference which takes place in Helsinki on 12-14 June 2022.
The recording of the forum is available until 3 July 2023.
Programme
| 9.30 |
Doors open and coffee for participants on site
|
|---|---|
| 10.00 (9.00 CEST) |
Welcome words
Jyrki Katainen, President of Sitra
Moderator: André Noël Chaker |
|
10.05 (9.05) |
5+1 success factors behind TEHDAS
Markus Kalliola, Project Director & TEHDAS Coordinator, Sitra
|
|
10.15 (9.15) |
TEHDAS results: Data quality framework & Infrastructure
Enrique Bernal-Delgado, Senior scientist in Health Services and Policy Research, Institute of Health Sciences in Aragon & Klara Lundgren, Information Security Manager for Health Data, Norwegian Directorate of e-health
Front row comments by stakeholders: Fia Westerholm, EMA & Jacqui van Rens, European Cystic Fibrosis Society Participants’ voice |
|
10.35 (9.35) |
TEHDAS results: Governance & Citizen perspectives
Michel Silvestri, Head of Unit, Swedish eHealth Agency & Louise Mathieu, Researcher, Sciensano
Front row comments by stakeholders: Susanna Flaherty, IQVIA & Jaanus Pikani, Scanbalt Participants’ voice |
|
11.15 (10.15) |
TEHDAS results: Sustainability of the European health data space
Tapani Piha, Senior Advisor, Sitra & Henrique Martins, Associate Professor, ISCTE – Lisbon University Institute
Front row comments by stakeholders: Alan Fraser, Biomedical Alliance in Europe & Hille Hinsberg, Product Manager, Proud Engineers, Estonian Connected Health Cluster Participants’ voice |
|
11.40 (10.40) |
Coffee break & networking for on-site participants
|
|
12.10 (11.10) |
Keynote: Future of personalised health
Antonio Estrella, Author & Strategic Futurist
|
|
12.25 (11.25) |
Panel discussion: Taking a broader view – Global health
Moderator: Elizabeth Kuiper, Associate Director and Head of the Social Europe and Wellbeing programme, European Policy Centre
Panelists: Antonio Estrella, Author & Strategic Futurist Sirpa Pietikäinen, Member of the European Parliament |
|
12.45 (11.45) |
Way forward
Mario Jendrossek, European Projects Lead, French Health Data Hub
Tommi Nyrönen, Director, ELIXIR Finland Head of Node, CSC – IT Center for Science Mélodie Bernaux, Policy Officer, DG SANTE, European Commission Markus Kalliola, Project Director, Sitra |
|
12.55 (11.55) |
Closing words
André Noël Chaker
|
| 13.00 |
Networking for on-site participants
|
Programme is subject to change. Please note the time zone.
Inquiries: tehdascoordination@sitra.fi
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