HEALTH DATA 2030
Our project creates solutions, draws up rules and builds a bridge for the cross-border use of health data in Europe.
What is it about?
Tackling the complex problems of a rapidly changing world requires increasingly versatile co-operation. For example, the Covid crisis has highlighted the importance of joint European health projects and data sharing. Trust in the use of data between countries requires transparency, functional frameworks and joint regulation.
The European Health Data Space as outlined in the EU data strategy promotes the development of health systems, and the availability, efficiency and sustainability of services. Research and innovation also benefit from improved access to data.
We must create common rules, operating models and solutions for the cross-border use of health data that respect people’s right to privacy. The Health data 2030 project implements the strategic objectives of the Fair Data Economy theme, to be launched in January 2021, from the perspective of the use of health data.
Finland has an excellent opportunity to lead the way in the use of health data in the EU. One of the objectives in this key area is to scale the lessons learned in our Digital Health Hub (Isaacus) project to the EU level and to ensure that the development of digitalisation and the related data economy bring benefits to Finnish companies.
The Health data 2030 project continues our previous projects for boosting electronic services: the Data exchange layer is already speeding up the transfer of data from one system to another in Finland and in Estonia. The Health and social data permit authority Findata grants permits for the secondary use of data, improves data security and promotes the data protection of citizens. We laid the groundwork for the Findata operating model in the Isaacus project, in which we promoted the secondary use of health and social data for research purposes, among other things. The IHAN project has paved the way for a fair data economy and developed practical tools and rules for companies and other organisations using data. In the future, individuals’ own data will be an important addition as we move towards individual-oriented healthcare and welfare services.
What do we do?
We implement co-operation projects with businesses and other organisations to promote Finland’s competitiveness and the use of health data, and co-ordinate the EU’s Joint Action Towards the European Health Data Space (TEHDAS).
By being involved at the heart of development, we make a favourable contribution to the rules and boost the competitiveness of Finnish companies as the predictability of the operating environment increases. Through its communications, the European Commission has outlined the digital future of Europe until 2025.
From an individual’s point of view, it is important that when developing digitalisation and the data economy we ensure the implementation of individual rights and the empowerment of individuals to use their own data.
The project has been designed to ensure Finland’s active role in sustainable digitalisation development. Sustainable digitalisation is associated with the development of a European single market for data as defined in the European data strategy and the ethical use of artificial intelligence as a driver of data-based services.
Who is taking part?
European well-being is being built in co-operation with a wide range of international stakeholders. In addition to the public and those within the third sector, the participants include companies and research and development organisations.
Where are we at?
The project was launched in autumn 2020 and will finish at the end of 2023.