HEALTH DATA 2030

Our project creates solutions, draws up fair rules and builds a bridge for the cross-border use of health data in Europe, and supports the competitiveness of the Finnish health sector.

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What is it about?

Tackling the complex problems of a rapidly changing world requires increasingly versatile co-operation. For example, the covid-19 crisis has highlighted the importance of European cooperation and data sharing. Trust in the use of data between countries requires transparency, functional frameworks and joint regulation.

The European Health Data Space as outlined in the EU data strategy promotes the development of health systems, and the availability, efficiency and sustainability of services. Research and innovation also benefit from improved access to data.

We must create common rules, operating models and solutions for the cross-border use of health data that respect people’s right to privacy. The Health data 2030 project implements the strategic objectives of the Fair data economy theme, launched in January 2021, from the perspective of the use of health data.

Finland has an excellent opportunity to lead the way in the use of health data in the EU. One of the objectives in this key area is to scale the lessons learned in our Digital Health Hub (Isaacus) project to the EU level and to ensure that the development of digitalisation and the related data economy bring benefits to Finnish companies.

The Health data 2030 project continues our previous projects for boosting data economy: Isaacus project prepared the rules for secondary use of health information in Finland. Now Findata, grants permits for the secondary use of data, improves data security and promotes the data protection of citizens. The IHAN project paved the way for a fair data economy and developed practical tools and rules for companies and other organisations using data. In the future, individuals’ own data will be an important addition as we move towards individual-oriented healthcare and welfare services.

What do we do?

First, the focus is on creating a snapshot with stakeholders, through interviews, workshops and surveys. We want to promote the use of health data with ambition in Finland. Building on the snapshot, we will launch trial projects to drive change. We are also going to create a long-term strategy that challenges our society to reform.

Finland is part of the EU common market. However, we will not be able to take full advantage of the benefits of the data economy if the EU is not competitive. We are co-ordinating the EU’s Joint Action Towards the European Health Data Space (TEHDAS) to create common rules for the secondary use of health data.

By being involved at the heart of development, we make a favourable contribution to the rules and boost the competitiveness of Finnish companies as the predictability of the operating environment increases.

In the development of digitalisation and the data economy, we must ensure that individual rights are fulfilled and people become empowered to use their own data.

The aim of the project is to ensure Finland’s active role in sustainable digitalisation development. Sustainable digitalisation is associated with the development of a European single market for data as defined in the European data strategy and the ethical use of artificial intelligence as a driver of data-based services.

Who is taking part?

European well-being is being built in co-operation with a wide range of international stakeholders. In addition to the public and third sectors, the companies and research and development organisations are required.

Where are we at?

The project was launched in autumn 2020 and will finish at the end of 2023.

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